What OCD Is Like & 5 Realities People Living With The Disorder Face Every Day

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We're taught from a young age that nothing and no one is perfect, but for people struggling with obsessive compulsive disorder (OCD), this can be a very difficult concept to grasp. For those unfamiliar with the disorder, OCD is a mental illness that stems from intrusive thoughts, images, or urges that trigger feelings of distress, leading to physical coping mechanisms, otherwise known as compulsions. Unless you struggle with the disorder yourself, it’s almost impossible to truly understand what OCD is like, but in order to lend a helping hand to loved ones who may be suffering, it’s important that we try.

It seems that a common misconception people make when it comes to OCD is assuming it’s solely an issue of obsession, but that’s only half the battle. According to the International OCD Foundation, the disorder is really split into two parts: the obsessions, and the compulsions that follow in order to cope with those intense fixations. For example, a common obsession for someone with OCD is the fear of catching germs or disease. The compulsions that follow would be things like excessive showering, tooth-brushing, washing hands, or cleaning the house.

In his new novel Turtles All the Way Down, award-winning novelist John Green has put into his own words what it’s like to live with the “way-down terror” that is OCD. He told Entertainment Weekly that he had not originally intended to write an entire book on the subject, but he needed “to try and find expression” for the disorder that is very much a part of his daily life.

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He explained,

Part of what’s terrifying about pain is that it’s difficult to access or describe via sentences. It’s what’s so frustrating for me and what’s scary about my own mental health problems.
I wanted to be able to show people what it is really like. I wrote the book in the hopes that people who go through this would feel less alone and also in the hopes that people who don’t go through it can maybe glimpse something about it.

While those of us who don't suffer from OCD ourselves can never truly understand what the disorder can do to a person both mentally and physically, it's nonetheless important that we try our best to do so. Here are a few examples of the realities people with OCD face in their everyday lives.

1Those Who Struggle With OCD Experience Thoughts That Cannot Be Controlled

In a study performed by the Center for Addiction and Mental Health, researchers observed the inner workings of the brains of 40 different people, 20 of whom suffered from some form of OCD. The results showed that those clinically diagnosed with the disorder experienced 32 percent more inflammation in certain areas of the brain, which worsened if they tried resisting their compulsions.

One of the most disheartening aspects of obsessive compulsive disorder is that it is truly out of the person's control. Dr. Danielle Forshee, LLC describes the OCD mind as "constantly cycling."

She tells Elite Daily,

[Those who suffer from OCD] cannot control the content of the thoughts, nor can they control the intensity or the frequency of the thoughts.
For someone with true OCD, they do not want to have these thoughts, and they are uncomfortable, scary, and irrational. When they try to ignore the thoughts or images, they realize that the only way to get them to go away is to do a compulsion, a physical act, or a mental act to get rid of the thought and the anxiety associated with that thought.

2These Obsessions And Compulsions Stem From Intensely Fearful Emotions

The International OCD Foundation lists the following as common obsessions in OCD: contamination, losing control, harm, unwanted sexual thoughts, religious obsessions (such as being overly concerned with offending God or right/wrong morality), and superstitions.

All of these obsessions are originally derived from fear which, according to American journalist, editor, and author of Journaling Fame: A Memoir Of A Life Unhinged And On The Record Allison Kugel, is the main reason people develop OCD in the first place.

She tells Elite Daily,

Feeling fearful is uncomfortable, so the mind finds ways to cope with and diffuse the fear. One popular mechanism by which it does this in some people is a counter-phobic reaction or "OCD."
So it could be "touch the wall as you walk by," "check the lock on the door five times," "read the page in the book over and over," "wash your hands over and over." The OCD patterns are different for different people, but the reason for it is always the same, across the board.
It is an erroneous way of keeping the anxiety (or phobias) at bay. You tell yourself through magical thinking that if you do these rituals, you will then be safe.

3OCD Can Affect Your Ability To Work

When someone lives with OCD, getting ready for the day and making it out the door on time to make it to work by 9 a.m. can be a job all its own.

Now try to imagine settling into a work environment and staying on-task while you have intense, unwanted, and above all 100 percent uncontrollable thoughts constantly weaving in and out of your brain. It's not easy, and it can absolutely have a negative effect on your work performance.

May Nuñez, licensed mental health counselor at Ketamine Health Centers, tells Elite Daily that a realistic example of a struggle at the office for someone with OCD might entail "having to organize your desk 20 times before you begin your work day."

She continues, "OCD is not limited to persistent repetition of words and actions, but can also be characterized by compulsive behavior, agitation, hyper vigilance, impulsivity, ritualistic behavior, social isolation, and obsessive thinking by nature.”

4The Disorder Has Physical, In Addition To Mental, Repercussions

The physical effects of OCD don't stop at compulsions.

The nervous system can be monstrous on the body, and you probably know this from experience. Have you ever had a bout of extreme anxiety, and all of a sudden, you felt sharp stomach pains, or noticed you had difficulty breathing? If so, that was likely your nerves wreaking havoc on your physical body. It happens to all of us, but especially to those with OCD.

Aaron Harvey, founder of IntrusiveThoughts.org, says the effect that OCD can have over the people you love, as well as your own beliefs, can be "overwhelmingly visceral."

He tells Elite Daily that the extremely graphic imagery in the mind can be surreal, almost dreamlike, and you can start to feel pain that doesn't actually exist, "like razor blades in your stomach."

5OCD Can Also Cause You To Feel Negatively About Yourself

Unfortunately, those who are clinically diagnosed with OCD are additionally susceptible to developing major depressive disorder.

Because those who live with OCD find difficulty in completing simple tasks or gaining control over their thoughts, the disease becomes even more of an internal struggle.

Harvey discusses his own experience living with OCD with Elite Daily, explaining that the disorder has ultimately attacked his belief system, resulting in "two decades of learned helplessness, and learned self-hatred."

He continues, "Despite any achievements on the surface, my brain is conditioned to believe I am a horrible person, character-less, lost."

Very Well reports that it is extremely important to seek professional assistance when battling both depression and obsessive compulsive disorder, as symptoms of depression can interfere with the psychological treatments patients undergo for OCD.

OCD is a battle, one that no one should have to fight alone. Although we may not fully understand what it's like for our loved ones to live with the disorder day in and day out, it is important that we do our research and try our best to help them cope. No one should have to navigate through their darkness alone.